Analysis of websites containing proraris.ch backlinks

ProRaris est une organisation faîtière qui rassemble les associations de patients atteints de maladie rare et les patients orphelins d’association. ProRaris s’engage pour un accès équitable aux prestations des soins de santé. Elle veille à la mise en oeuvre du concept national maladies rares dans l’intérêt des personnes concernées.

RareConnect promotes global conversation and collaboration to improve the lives of rare disease patients and assist the organizations that serve them. RareConnect is an online social network for patients and families who live with one of over 6,000 rare diseases to connect with one and other to support and share vital experiences on aspects of living with a rare disease. Organized into disease specific communities, the platform also provides links to quality information, clinical trials and research publications and provides an opportunity for international networking and collaboration between patient organizations.

Willkommen auf der Website der Vereinigung Dravet Syndrom Schweiz

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