Eurordis Eurordis registered domains
See the full list of 63 domain names linked to Eurordis Eurordis
Websites found: 63
Number of websited displayed: 63
List of results:
Accueilhttp://site-overview.com/stats/polyposes-familiales.fr
La polypose familiale est une affection d'origine génétique provoquant le développement de nombreux polypes sur le colon. Le site de l'APTEPF vous décrit cette affection et son traitement
- Google Analytics ID: 69825661-1
- Website Address renewal date: 16/7/13
- Domain Address Reg. date: 15/7/13
- Website address in use until: 17/7/13
European Network for Rare and Congenital Anaemias - Enercahttp://site-overview.com/stats/enerca.org
ENERCA means easy access to a high quality information on rare anaemias for patients, citizens, health professionals, stakeholders, authorities and pharmaceutical industry.
- Website Address renewal date: 17/11/7
- Domain Address Reg. date: 03/3/25
- Website address in use until: 19/3/25
FMF España - Asociación de Fiebre Mediterránea Familiarhttp://site-overview.com/stats/fmfspain.com
Bienvenidos a la web oficial de FMF España, la Asociación de enfermos de Fiebre Mediterránea Familiar de España.
- Website Address renewal date: 17/9/4
- Domain Address Reg. date: 15/9/9
- Website address in use until: 19/9/9
Utoolize | Increase Video Viewers Engagementhttp://site-overview.com/stats/utoolize.com
Utoolize is a web platform designed to help you get the most out of your video content by maximizing its visibility and its return of investment.
- Google Analytics ID: 92154844-1
- Website Address renewal date: 16/5/20
- Domain Address Reg. date: 10/5/25
- Website address in use until: 18/5/25
Rare Disease Day USA | Homehttp://site-overview.com/stats/rarediseaseday.us
Join the National Organization for Rare Disorders (NORD) in raising awareness for the 30 million patients with rare diseases in the U.S. on Rare Disease Day®.
- Google Analytics ID: 5033474-2
- Website Address renewal date: 12/5/28
- Domain Address Reg. date: 09/1/13
- Website address in use until: 18/1/13
Alström Syndrome International | Supporting those affected by Alström Syndromehttp://site-overview.com/stats/alstrom.org
The website for Alstrom Syndrome International is meant to provide information and resources for those affected by Alstrom Syndrome as well as raise awareness.
- Google Analytics ID: 33170498-1
- Website Address renewal date: 17/9/5
- Domain Address Reg. date: 02/10/4
- Website address in use until: 18/10/4
HOME - Fundacja MATIOhttp://site-overview.com/stats/mukowiscydoza.pl
Serwis MATIO Fundacji Pomocy Rodzinom i Chorym na Mukowiscydozę
- Google+ Identity: 108051784528587783542
- Google Analytics ID: 43483647-1
GEDRhttp://site-overview.com/stats/estudandoraras.blogspot.com.br
O Grupo de Estudo de Doenças Raras tem como objetivo disponibilizar informação sobre cuidados de saúde.
- Google+ Identity: 102315173586512211859
- Google Adsense Publisher: pub-1556223355139109
Federación Española de Enfermedades Rarashttp://site-overview.com/stats/enfermedades-raras.org
Descubre las Enfermedades Raras y cómo FEDER apoya a las personas que las sufren. Todo sobre las ER.
- Google Analytics ID: 19843317-1
- Website Address renewal date: 16/11/19
- Domain Address Reg. date: 03/10/10
- Website address in use until: 17/10/10
Welcome ~ APS Foundation of America, Inchttp://site-overview.com/stats/apsfa.org
- Known AddThis user account: xa-4a21b4387bef1480
- Website Address renewal date: 16/10/31
- Domain Address Reg. date: 05/6/18
- Website address in use until: 17/6/18
Муковисцидоз - симптомы, лечение, муковисцидоз у детей и взрослыхhttp://site-overview.com/stats/mukoviscidoz.org
Муковисцидоз: симптомы и лечение. Признаки муковисцидоза. Лечение муковисцидоза у детей и взрослых. Муковисцидоз - наследственная болезнь.
- Website Address renewal date: 17/6/19
- Domain Address Reg. date: 12/7/13
- Website address in use until: 18/7/13
Home | European Lung Foundation - ELFhttp://site-overview.com/stats/european-lung-foundation.org
- Google Analytics ID: 27714158-9
- Website Address renewal date: 15/9/8
- Domain Address Reg. date: 05/9/1
- Website address in use until: 17/9/1
Ukmasto - UK Mastocytosis Support Grouphttp://site-overview.com/stats/ukmasto.org
Support for sufferers and carers of Systemic Mastocytosis
- Google Analytics ID: 15222642-18
- Website Address renewal date: 17/9/21
- Domain Address Reg. date: 12/10/9
- Website address in use until: 18/10/9
Duchenne Parent Project Españahttp://site-overview.com/stats/duchenne-spain.org
- Google Analytics ID: 35453731-1
- Website Address renewal date: 18/2/22
- Domain Address Reg. date: 09/3/4
- Website address in use until: 19/3/4
EURORDIS - The Voice of Rare Disease Patients in Europehttp://site-overview.com/stats/eurordis.org
EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 745 rare diseases patient organisations in 65 countries. We are dedicated to improving the quality of life of all people living with rare diseases in Europe
- Google+ Identity: 114387522754314829925
- Google Analytics ID: 4015132-1
- Website Address renewal date: 16/12/21
- Domain Address Reg. date: 00/11/23
- Website address in use until: 17/11/23
MEBO RESEARCHhttp://site-overview.com/stats/meboresearch.org
- Google Analytics ID: 37051913-1
- Website Address renewal date: 17/3/12
- Domain Address Reg. date: 10/6/3
- Website address in use until: 17/6/3
Las enfermedades raras en Españahttp://site-overview.com/stats/webenfermedadesraras.org
Dedicado a las enfermedades raras en general, comentando la situación en España y sugiriendo herramientas útiles para las asociaciones pequeñas.
- Google+ Identity: 116872576739658339647
- Google Analytics ID: 66914837-1
- Google Adsense Publisher: pub-1556223355139109
- Website Address renewal date: 17/10/30
- Domain Address Reg. date: 11/10/29
- Website address in use until: 18/10/29
Herzlich Willkommen auf unseren Seiten - GBS und CIDP Selbsthilfehttp://site-overview.com/stats/gbs-selbsthilfe.org
Herzlich Willkommen auf unseren Seiten, Selbsthilfe, Guillain Barré Syndrom, GBS, chronische inflammatorische demyelinisierende Polyneuropathie, CIDP
- Website Address renewal date: 17/10/9
- Domain Address Reg. date: 16/7/6
- Website address in use until: 18/7/6
Nationella Funktionen Sällsynta Diagnoserhttp://site-overview.com/stats/nfsd.se
Här finns samlad information inom området för personer som lever med sällsynt diagnos och deras närstående samt för professionen.
- Google Analytics ID: 41880469-1
- Website address in use until: 18/12/9
- Domain Address Reg. date: 11/12/9
- tre8bre -http://site-overview.com/stats/tre8bre.blogspot.it
- Google+ Identity: 103654885867745359282
- Google Analytics ID: 21365624-1
- Google Adsense Publisher: pub-1556223355139109
Homehttp://site-overview.com/stats/epp-deutschland.de
Selbsthilfe EPP e.V. - "WENN SONNE WEH TUT"
- Website Address renewal date: 07/12/28
Vzácná onemocněníhttp://site-overview.com/stats/rarediseases.cz
- Google Analytics ID: 48470135-1
Deutsche Syringomyelie und Chiari Malformation e.V.http://site-overview.com/stats/deutsche-syringomyelie.de
Deutsche Syringomyelie und Chiari Malformation,e,V. DSCM, Syringomyelie, Syring, Syrinx, Chiari Malformation, ACM, Chiari, CM, Selbsthilfe,SHG, Rückenmark, Rückenmarkserkrankung, neurologisch, Zyste, Chronische Erkrankung, Neurologie, neurologische Erkrankung, Syringomyelie Therapie, Diagnose, gemeinnützig, Verein,Bundesverband, Mitglied, Beirat, Beiräte, Neurochirurg,
- Website Address renewal date: 15/8/3
CRE Enfermedades Raras. Centro de Referencia Estatal de Atención a Personas con Enfermedades Raras y sus Familias de Burgos :: Iniciohttp://site-overview.com/stats/creenfermedadesraras.es
El Centro de Referencia Estatal de Atención a Personas con Enfermedades Raras y sus Familias de Burgos (Creer) del Imserso en Burgos se configura como un centro avanzado en la promoción, desarrollo y difusión de conocimientos, experiencias innovadoras y métodos de atención social a personas con enfermedades raras o poco frecuentes, y de alta especialización en servicios sociales de apoyo a familias y cuidadores y en servicios de prevención, promoción de la autonomía personal y participación social de las personas con dichas enfermedades.
- Google Analytics ID: 2164881-29
Ectodermal Dysplasia Societyhttp://site-overview.com/stats/ectodermaldysplasia.org
- Website Address renewal date: 17/9/14
- Domain Address Reg. date: 00/9/21
- Website address in use until: 18/9/21
IBTAhttp://site-overview.com/stats/theibta.org
- Google Analytics ID: 74489970-1
- Website Address renewal date: 17/4/18
- Domain Address Reg. date: 05/5/18
- Website address in use until: 18/5/18
Bienvenue sur notre site de l’ANC - anc-narcolepsiehttp://site-overview.com/stats/anc-narcolepsie.com
presentation du site de l'ANC (Association Nationale de Narcolepsie Cataplexie et des Hypersomnies Rares)
- Website Address renewal date: 17/6/28
- Domain Address Reg. date: 06/3/16
- Website address in use until: 19/3/16
eurobiobank.orghttp://site-overview.com/stats/eurobiobank.org
- Website Address renewal date: 15/9/24
- Domain Address Reg. date: 03/6/6
- Website address in use until: 18/6/6
AMSAO - Accueilhttp://site-overview.com/stats/amsao.fr
Association des Malades Souffrant d'Angioedèmes - France
Social Platform | The platform of European Social NGOshttp://site-overview.com/stats/socialplatform.org
- Known AddThis user account: ra-5146f6c11dd3ac2d
- Google Analytics ID: 42470359-1
- Website Address renewal date: 17/7/31
- Domain Address Reg. date: 99/7/30
- Website address in use until: 18/7/30
Home | Alfie Milne Lymphangiomatosis Trusthttp://site-overview.com/stats/alfiemilne.org.uk
At the Alfie Milne Trust we raise awareness and support for those that are suffering with a rare condition called Lymphangiomatosis
- Google Analytics ID: 25462977-1
- Website Address renewal date: 17/8/23
- Domain Address Reg. date: 11/8/29
- Website address in use until: 19/8/29
ProRaris - Alliance Maladies Rares Suisse :: Alliances Maladies Rares :: Suissehttp://site-overview.com/stats/proraris.ch
ProRaris est une organisation faîtière qui rassemble les associations de patients atteints de maladie rare et les patients orphelins d’association. ProRaris s’engage pour un accès équitable aux prestations des soins de santé. Elle veille à la mise en oeuvre du concept national maladies rares dans l’intérêt des personnes concernées.
- Known AddThis user account: Conchita123
- Google Analytics ID: 72572473-1
EGA - European Gaucher Alliancehttp://site-overview.com/stats/eurogaucher.org
European Gaucher Alliance
- Known AddThis user account: ra-56f290c901169d3f
- Google Analytics ID: 7109128-2
- Website Address renewal date: 16/9/22
- Domain Address Reg. date: 09/1/20
- Website address in use until: 20/1/20
OMD v SR - Aktualityhttp://site-overview.com/stats/omdvsr.sk
Organizácia muskulárnych dystrofikov je nezisková organizácia s celoslovenskou pôsobnosťou.
- Google Analytics ID: 11484234-1
Prader Willihttp://site-overview.com/stats/praderwilli.it
Federazione Nazionale Italiana malati Sindrome Prader-Willi
- Google Analytics ID: 41504628-4
- Website Address renewal date: 17/10/28
- Domain Address Reg. date: 01/6/27
- Website address in use until: 18/10/12
--- Deutsche Sarkoidose-Vereinigung gemeinnütziger e.V. ---http://site-overview.com/stats/sarkoidose.de
--- Die Deutsche Sarkoidose-Vereinigung gemeinnütziger e.V. ist der Zusammenschluss von Sarkoidose-Erkrankten und ihren Angehörigen, und setzt sich für die nachhaltige Verbesserung der Situation Sarkoidose-Kranker ein und bemüht sich um die Förderung der Erforschung dieser Erkrankung. ---
- Website Address renewal date: 09/5/17
Connecting Rare Disease Patients Globally - RareConnecthttp://site-overview.com/stats/rareconnect.org
RareConnect promotes global conversation and collaboration to improve the lives of rare disease patients and assist the organizations that serve them. RareConnect is an online social network for patients and families who live with one of over 6,000 rare diseases to connect with one and other to support and share vital experiences on aspects of living with a rare disease. Organized into disease specific communities, the platform also provides links to quality information, clinical trials and research publications and provides an opportunity for international networking and collaboration between patient organizations.
- Google Analytics ID: 4015132-5
- Website Address renewal date: 17/4/20
- Domain Address Reg. date: 11/5/29
- Website address in use until: 18/5/29
Alliance Maladies Rares : un collectif, un mouvement et un réseau.http://site-overview.com/stats/alliance-maladies-rares.org
La mission de l’Alliance Maladies Rares est de susciter, de développer, sur les questions communes aux maladies rares et aux handicaps rares, d’origine génétique ou non, toutes actions de recherche, d’entraide, d’information, de formation et de revendication.
- Google Analytics ID: 39978101-2
- Website Address renewal date: 17/8/21
- Domain Address Reg. date: 01/9/21
- Website address in use until: 18/9/21
DRAVET ITALIA ONLUShttp://site-overview.com/stats/dravet-italia.org
La Dravet Italia ONLUS nasce con l’intento di migliorare la qualità della vita dei bambini affetti da questa grave forma di epilessia: la sindrome di Dravet.
- Google Analytics ID: 46554058-5
- Website Address renewal date: 17/2/27
- Domain Address Reg. date: 10/12/10
- Website address in use until: 18/12/10
World Cities Day - Barcelona 2017http://site-overview.com/stats/diamundialciutats.org
- Google Analytics ID: 108243967-1
- Website Address renewal date: 17/11/26
- Domain Address Reg. date: 17/9/26
- Website address in use until: 18/9/26
SGP homehttp://site-overview.com/stats/porphyria.ch
Children with Spinal Muscular Atrophyhttp://site-overview.com/stats/csma.org.ua
Спинальная мышечная атрофия, помощь, информационная поддержка регистры международные Украинский Spinal muscular atrophy SMA Registry
- Known AddThis user account: ra-4def2f2e680b99d8
- Google Analytics ID: 52712964-2
- Website address in use until: 18/6/29
- Domain Address Reg. date: 06/7/1
FEMEXER – Federación Mexicana de Enfermedades Rarashttp://site-overview.com/stats/femexer.org
Federación Mexicana de Enfermedades Raras
- Google+ Identity: +FemexerOrg_fanpage
- Website Address renewal date: 17/3/11
- Domain Address Reg. date: 11/3/16
- Website address in use until: 18/3/16
Cystinosis Foundation - Founded in 1983 - Serving Families for Over 25 Yearshttp://site-overview.com/stats/cystinosisfoundation.org
The ORIGINAL Cystinosis Foundation. We are a non-profit organization, with more than 34 years of International experience in supporting and educating families and the medical community through the dissemination of educational literature, funding research, and annual conferences.
- Google Analytics ID: 13224290-46
- Website Address renewal date: 17/6/1
- Domain Address Reg. date: 99/6/25
- Website address in use until: 18/6/25
Association Française du syndrome d'Angelman - AFSAhttp://site-overview.com/stats/angelman-afsa.org
L'AFSA : Association francophone du syndrome d'Angelman
- Google Analytics ID: 26853557-28
- Website Address renewal date: 18/1/24
- Domain Address Reg. date: 00/1/24
- Website address in use until: 19/1/24